Long-term health outcomes of people living with spina bifida
🏛 Centers for Disease Control - NCBDDD
✓ Free, no account · Source: Grants.gov · Last verified Oct 19, 2026
Can you apply?
This grant is for specialized medical institutions and clinical centers that provide care to children and adults with spina bifida. Applicants must operate a spina bifida clinic and be able to participate in the National Spina Bifida Patient Registry (NSBPR). Organizations must have capacity to collect high-quality longitudinal data and conduct clinical research or implementation science.
Component A focuses on data collection and outcomes analysis. Component B requires expertise in urologic management and pediatric care for myelomeningocele. Both require established patient populations and clinical infrastructure. No cost sharing is required to apply.
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Key dates
- Aug 26, 2026 Applications open
- Oct 26, 2026 Application deadline in 6 days
- Jan 15, 2027 Award announced
- Sep 1, 2027 Project start
Program description
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Who can apply
Eligible applicants
- 501(c)(3) Public Charity
- City / Municipal Government
- Community Health Center
- County Government
- Hospital
- Nonprofits
- Private University
- Public K-12 School
- Public University
- Small Business (SBA-defined)
- Special District
- State Government
- Tribal Nation
Demographic focus
How to apply
Application links
Key dates & requirements
Required documents
- SF-424 (Application for Federal Assistance)
- Project Narrative (research or implementation plan)
- Budget and Budget Justification
- Biographical Sketches (key personnel)
- Letters of Commitment (from clinic directors/institutional partners)
- Data Management Plan
- Organizational Capacity Documentation
Program contact
- 👤 Stephanie Griswold
- 📧 eut6@cdc.gov
- 📞 404-718-2623
Funding track record
Recent awards under CFDA 93.073 from the last 3 years — real organizations that won funding through this same program.
Top 10 Largest Recent Awards
-
$102,371,938
-
$38,904,574
-
$12,030,667
-
$7,345,638
-
$6,940,898
-
$6,659,319
-
$5,459,249
-
$5,086,576
-
$4,692,268
-
$4,500,000
Top States by Funding
- DC 4 awards $105.9M
- AL 1 awards $38.9M
- MD 4 awards $19.6M
- UT 4 awards $18.8M
- NY 5 awards $16.1M
Source: USAspending.gov — federal spending transparency. Data covers last 3 years.
Funding history
Annual funding for this program — Federal obligations (CFDA 93.073). How funding has trended year over year.
| 2024 | $59,997,073 | |
| 2025 | $66,807,866 | |
| 2026 est. | $66,807,866 |
FAQ
Who can apply for this grant?
Medical institutions, specialized clinics, and healthcare organizations that operate spina bifida clinics and participate in NSBPR. Universities and research hospitals with pediatric/adult spina bifida programs are eligible.
What is the difference between Component A and Component B?
Component A focuses on longitudinal data collection from existing clinics. Component B implements and evaluates the UMPIRE urologic protocol for young children with myelomeningocele.
How much funding is available?
Awards range from $100,000-$300,000. Component A expects 8-11 awards; Component B expects 6-8 awards from a $3 million total pool.
What activities are funded?
Data collection from specialty clinics, longitudinal patient tracking, clinical data analysis, research dissemination, and for Component B, protocol implementation and evaluation.
When is the deadline?
The deadline is October 26, 2026. This is a fixed deadline, not rolling.
💡 Tips for applicants
- Emphasize your clinic's existing capacity to collect high-quality, longitudinal data on spina bifida patients. Show track record of data completeness and accuracy.
- For Component B applicants, highlight expertise in pediatric urology, myelomeningocele management, and readiness to implement the UMPIRE protocol.
- Build partnerships with the National Spina Bifida Patient Registry early. Demonstrate integration with their data systems and standards.
- Detail your patient population size and diversity. Show you can track patients long-term with high retention rates.
- Include a clear data analysis and dissemination plan. Explain how findings will improve clinical care and outcomes for spina bifida patients.
⚠️ Common mistakes
Applying without established spina bifida clinic infrastructure or patient population. Submitting without clear alignment to NSBPR participation and data collection standards. Underestimating the technical and staffing resources needed for longitudinal patient tracking and rigorous data management.
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