GREGoRi Data Coordination and Outreach Center (U01, Clinical Trials Not Allowed)
🏛 National Institutes of Health (HHS-NIH11)
✓ Free, no account · Source: Grants.gov · Last verified Jul 15, 2026
Can you apply?
This grant is for research institutions establishing data coordination and outreach centers supporting the GREGoRi research network. Eligible applicants include academic medical centers, research hospitals, and nonprofit research organizations with strong data management infrastructure. The grant supports collaborative research activities but explicitly excludes clinical trials as primary activities. U01 awards typically require institutional commitment and established research capacity.
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Key dates
- Jun 18, 2026 Applications open
- Jul 6, 2026 Award announced
- Jul 6, 2026 Project start
- Oct 30, 2026 Application deadline in 106 days
Program description
The National Human Genome Research Institute (NHGRI) intends to promote a new initiative by publishing a Notice of Funding Opportunity (NOFO) to renew the Genomics Research to Elucidate the Genetics of Rare Disease (GREGoR) program. The renewal, called GREGoR: Innovation (GREGoRi), seeks to accelerate a paradigm shift in rare disease diagnosis by reimagining the tools, molecular technologies and analytical approaches used to identify the causal gene(s) and/or variant(s) underlying rare genetic disorders. The purpose of this Notice of Funding Opportunity is to establish the GREGoRi Data Coordination and Outreach Center. The Data Coordination and Outreach Center will act as the central point of coordination for the GREGoRi Research Program, and will be responsible for ensuring that the data, metadata, computational tools and other protocols developed as part of GREGoRi are made available to the broader research community.
This Notice is being provided to allow potential applicants sufficient time to develop meaningful collaborations and responsive projects. The NOFO is expected to be published in 2025 with an expected application due date in 2026. This NOFO will utilize the U01 activity code.
Who can apply
Eligible applicants
How to apply
Application links
Key dates & requirements
Required documents
- SF-424 (R&R)
- Project Narrative (Research Strategy)
- Detailed Budget and Budget Justification
- Biographical Sketches (Key Personnel)
- Institutional Support Letters
- Data Management Plan
- Letters of Commitment from Partner Institutions
Program contact
- 👤 Lisa H. Chadwick National Human Genome Research Institute (NHGRI)
- 📧 lisa.chadwick@nih.gov
- 📞 301-435-7275
Funding track record
Recent awards under CFDA 93.172 from the last 3 years — real organizations that won funding through this same program.
Top 10 Largest Recent Awards
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$39,531,110
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$34,574,245
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$32,186,204
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$30,195,606
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$26,495,937
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$26,020,371
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$24,964,130
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$24,413,854
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$23,757,911
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$22,977,417
Top States by Funding
- CA 19 awards $317.2M
- MA 16 awards $302.5M
- WA 9 awards $140.1M
- NY 6 awards $93.6M
- NC 5 awards $93.0M
Source: USAspending.gov — federal spending transparency. Data covers last 3 years.
Funding history
Annual funding for this program — Federal obligations (CFDA 93.172). How funding has trended year over year.
| 2024 | $452,727,668 | |
| 2025 | $423,878,429 | |
| 2026 est. | $9,989,158 |
FAQ
Who can apply for this grant?
Academic medical centers, research universities, and nonprofit research institutions are eligible. Your organization should have data management expertise and capacity to coordinate a research network.
What activities are funded?
Data coordination, network infrastructure, outreach, and training activities. Clinical trials are not allowed as primary grant activities.
What is the expected funding amount?
U01 awards typically provide substantial multi-year funding, though exact amounts vary. Contact the NIH program officer for specific budget guidance.
How competitive is this grant?
NIH U01 grants are highly competitive. Strong preliminary data, institutional support, and experienced leadership are essential for competitiveness.
When are applications due?
Check the NIH grants.gov page for current deadlines. This funding opportunity may have rolling deadlines or specific submission dates.
💡 Tips for applicants
- Emphasize your institution's data management infrastructure and proven ability to coordinate multi-site research networks.
- Include letters of support from participating institutions showing commitment to the network's success.
- Detail your outreach strategy for engaging diverse research participants and community stakeholders.
- Highlight your team's prior experience managing large datasets and conducting rigorous data quality assurance.
- Clearly distinguish data coordination activities from clinical trial conduct, which is not eligible.
⚠️ Common mistakes
Applications fail when data management plans lack sufficient detail or institutional commitment is unclear. Proposals proposing clinical trials as core activities are ineligible and rejected. Weak outreach strategies or insufficient community engagement planning reduce competitiveness significantly.
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