Heritable Disorders
Program Funding
Annual program obligations reported to SAM.gov.
Funded Projects
Examples of what this program has supported.
States continue to engage in quality improvement activities to improve their screening and provision of newborn screening results to providers and families to decrease the time to confirmation of a diagnosis. 76% states collect 95% or more of newborn screening specimens within 48 hours of birth so that early testing and identification can occur and results are shared quickly so that providers can diagnose and begin treatment.
States continue to engage in quality improvement activities to improve their screening and provision of newborn screening results to providers and families to decrease the time to confirmation of a diagnosis. 76% states collect 95% or more of newborn screening specimens within 48 hours of birth so that early testing and identification can occur and results are shared quickly so that providers can diagnose and begin treatment.
Program Objective
The Heritable Disorders program serves to improve the ability of States 1) to provide newborn and child screening for heritable disorders and 2) to expand screenings as the capacity to screen for genetic and congenital conditions expands Newborn and child screenings occur at intervals across the life span of every child. Newborn screening universally provides early identification and follow-up for treatment of infants affected by certain genetic, metabolic, hormonal and/or functional conditions.
Eligibility
Eligible Applicants
- U.S. State Government
- Local
- Other
Eligible entities for the Heritable Disorders Program include a State or a political subdivision of a State; a consortium of two or more States of political subdivisions of States; a territory; a health facility or program operated by or pursuant to a contract with or grant from the Indian Health Service; or any other entity with appropriate expertise in newborn screening, as determined by the Secretary.
How to Apply
Award Procedure
All qualified applications will be forwarded to an objective review committee. Based on the recommendations of the objective review committee, the HRSA program official with delegated authority is responsible for final selection and funding decisions. Notification is made in writing by a Notice of Award.
Decision Timeline
- Approval: From 120 to 180 days
Final decisions are made 4 to 6 months after receipt of applications.
Program details & compliance
Description
The Heritable Disorders program serves to improve the ability of States 1) to provide newborn and child screening for heritable disorders and 2) to expand screenings as the capacity to screen for genetic and congenital conditions expands Newborn and child screenings occur at intervals across the life span of every child. Newborn screening universally provides early identification and follow-up for treatment of infants affected by certain genetic, metabolic, hormonal and/or functional conditions.
Mission Categories
Primary: Maternity, Infants, Children
Use of Funds
Allowed Uses
Heritable Disorders grants are made to improve the ability of States to provide newborn and child screening for heritable disorders, coordinate services and long-term follow-up for newborns and children identified with a condition through newborn screening, and to provide newborn screening education resources to patients, parents, families, and providers.
Restrictions
Funds can not be used for direct services.
Required Documentation
Applicants should review the individual HRSA notice of funding opportunity issued under this Assistance Listing for any required proof or certifications which must be submitted prior to or simultaneous with submission of an application package. 2 CFR 200, Subpart E - Cost Principles applies to this program.
Matching Requirements
Other Opportunities may include matching requirements. Please refer to the notice of funding opportunity.
Reporting & Compliance
Applicable 2 CFR 200 Subparts
- Subpart B — General Provisions
- Subpart C — Pre-Federal Award Requirements
- Subpart D — Post-Federal Award Requirements
- Subpart E — Cost Principles
- Subpart F — Audit Requirements